People with a rare disease are a vulnerable group, especially in situations like the current COVID-19 pandemic. The SJD Barcelona Children's Hospital, together with the Garrahan Hospital in Buenos Aires and the Sant Joan de Déu Foundation, coordinate this international registration aimed at reporting those patients who, with the diagnosis of a rare disease, have been treated in addition to infection by the COVID-19.

This registration is aimed at doctors who can report the symptoms of patients they have seen in their office, as well as some information about the infection, the underlying disease and the treatment before and during the infection. You can only answer once, so we recommend that you do so when you have enough time.

NOTE: The registration is intended to report pediatric and adult patients, whether or not they have overcome the disease. For any questions contact: share4kc@sjdhospitalbarcelona.org.

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